Wednesday, June 25, 2008

Discouraged.

This morning Spencer had his 4th routine VCUG (or voiding cystourethrogram) to check on his kidneys. Basically they stick a catheter up him, fill his bladder and then watch his kidneys as he pees. (Not a fun procedure for a little boy.) He had one when he was 1 day old, one at 6 months, one at 1 year, and then the one today. For this one they decided to sedate him since he's getting so big and a lot harder to hold down. Even though I was worried about it, I have to say, it was SO much easier this time having him asleep. Totally worth getting up at 5:30am to feed him breakfast because he couldn't eat after 6am until after the procedure at 12pm.

Of course he was screaming bloody murder for about 10 seconds while they put the mask on (which they informed me was cherry scented), then he quickly got quiet and kind of looked around and then in another second he was out.

He woke up easily when they were done and the first words out his mouth were, "All done. Go." The nurse gave him a sucker and turned on some "Dora" cartoons while he continued waking up. After about 15 minutes he was dressed and we were out of there onto visit his urologist.

After looking at the DVD they gave us at the imaging place, Dr. Baseman gave us the bad news.

His left kidney that has hydronephrosis (which is an enlarged kidney due to blockage in the ureter) is twice the size it was in December and some of the padding around the kidney is starting to deteriorate because of the blockage. Plus, his urinary reflux is still a grade 2 in both kidneys (so his urine instead of passing easily through the kidneys into his bladder is getting pushed back up).

The exact words out of the doctor's mouth were "I'm a little concerned about this." NOT something a parent wants to hear from a doctor.

So what do we have to do about it? Spencer has to go back to the hospital in three weeks to get a more in depth radiology test done. If the kidney function is less than 43% (which is very likely) then he'll most likely have to have some kind of surgery to get the blockage removed.

Needless to say, I was a little discouraged as we left the doctor's office, especially since things were looking better at his appointment in December.

However, I will say, I am amazed at the technology we have to determine these kinds of problems. They've known about Spencer's hydronephrosis since his first ultrasound, and his urologist has been carefully monitoring it since his birth two years ago. Kyle and I were talking on the way home and wondering what they did about this kind of problem 100 years ago? Did the people with this same problem just all of the sudden go into kidney failure? It really is amazing and a HUGE blessing. Thank heavens for doctors and technology!

14 comments:

Ashley Canady said...

That stinks! Sorry to hear that. I was so sure he would just outgrow it like Hayden did:( I too am thankful for the technology we have now. Hopefully he will not have to have surgery. If he does he will be just fine. He has a great Dr.

Crystal said...

What is up with little boys and kidney problems? (Spence and Jacob G.) That sucks. You'll have to keep us posted! If they do surgery to remove the blockage, is that pretty successful, like it was with Jacob G.?

Kristen said...

I know how much that kind of news scares moms--Briton had to have a little surgery when he was 6 mo. and I was scared to death. But you are so right about how blessed we are to live in a time when those kinds of problems can be remedied so easily. Keep us posted.

JC and Jen Young said...

Things like that are so scary!! I hate going to the dr. but thank heavens for them and all they can do and find. We will keep you guys in our thoughts and prayers. Hopefully everything will be fine when you go back in 3 weeks.

-Laura- said...

Ashley- I KNOW! I totally thought he would have at least grown out of the reflux by now. Ergh.

Crystal- It's weird, once Spencer was diagnosed with this (in utero) I started researching it and finding out how common it actually is in little boys. Some boys grow out of it, but it's a common surgery to have. So it's comforting to know it's not too weird of a problem to have. And the success rate is really really high.

Kristen- Wow, 6 months is little! I would have freaked out too. I think I'm a little more calm about it now that he's bigger, but still the word surgery makes me nervous.

Jen- You're so sweet. Thank you! I hate going to the doctor too. I'm so not excited about next week when I have to take Spencer AGAIN to the regular doctor for his checkup. He is not going to be a very happy kid.

hoLLy said...

i'm sorry laura:( but wow, you have such a great outlook on it all. i am impressed with your attitude! we'll keep your little guy in our prayers. sorry you are having to go through this.

the duchess said...

Our little Spencer's one tough cookie. We're keeping him in our prayers and sending you guys lots of positivity and well wishes. Technology in medicine today has made amazing strides.

Sarah said...

Thoughts and prayers from VA. Stay positive!

Shay said...

I'm sorry Laura. It hard to see anything negative happening to your kids. I totally agree - we have so much to be thanful for these days.

Emily said...

Aw man! I thought that it would go away, your December appointment was stellar, right? Sorry to hear the bad news, and as I always say to comfort myself-- it could be SO much worse. Sounds like Spencer is in good hands. You will get through this. It's just one of those bumps in the road. Thoughts with you.

Cindy said...

Hope everything can get figured out soon so Spencer can get better quicker!

Jennifer said...

That is such a bummer, but a blessing that we live in this day and age of medicine. Here I was, all freaked out over my son getting 5 shots. I really hope everything goes smoothly in the weeks to come. Take care of your little guy!

-Laura- said...

Thanks everyone for your well wishes and prayers. We REALLY appreciate them!

Erin S. said...

Laura, it's never fun to hear those kinds of things I'm sure! It sounds like a fairly routine surgery. (Though that doesn't make it any easier!) We'll keep him in our prayers!